Well, I decided to postpone the LDN(Low Dose Naltrexone) for a while unfortunately. Even though I was taking it 12 hours away from the tramadol, it was still causing me issues with “withdrawal” like symptoms. And because I am having dental surgery and my body needs to have as little stress as possible to fully recover from my upcoming surgery, I decided to wait until after I’ve recovered a little before I mess with either medication again. PLUS, if the dental issues have been part of the autoimmune issues, maybe my pain issues will subside and the fatigue won’t be as bad so it could make the whole transition easier anyway.
So Monday I went to my first appointment with the autonomic specialist. It was almost a two hour trip one way so by the time we finished with the appointment and got home it had taken most of the day and we were exhausted! The doctor wants all evidence available to send to my insurance to try to get the IVIG covered. He said that it will more than likely not be covered BUT that there was an upcoming study that the neurology board he’s on at the local medical school had been put in motion that morning, and I would be perfect for it which is awesome. So he gave me a bunch of labs to do to get a clearer picture of what was causing the Small Fiber Neuropathy…even though I have a Sjogrens diagnosis but because I don’t have Sjogrens antibodies and haven’t had a lip biopsy, he wanted to rule out other possible causes. Ya know, he’s a great doctor but I don’t like feeling like I need to defend my diagnosis. When doctors do this, it makes me feel like the doctor is telling me that what I am feeling, the hell I’ve been experiencing, isn’t real. Or maybe the doctor thinks I’m making a bigger deal out of it than it really is. It just feels kind of like either I’m not being taken seriously or my rheumatologist that made the diagnosis isn’t being taken seriously. Although, this doctor is checking for ALOT and is not arguing my SFN diagnoses he’s just trying to definitively diagnose what’s causing it for my sake and for research purposes which I understand. And truth be told, I’m not getting better, I’m getting worse, so it is a good doctors job to further investigate and explore other options as well as current diagnosis’s so I have to try not to take it personally. And I’m also aware that they need to prove to my insurance that every other possible cause has been disproven. I’m sure once he receives and thoroughly reviews all my records, he will get a clearer picture of my history then I’ll no longer feel like I need to defend my diagnosis. He tested me for something called Fabry Disease which I sincerely doubt I have but he says it causes SFN and migraines which I have but both of those are also part of the Sjogrens diagnosis. And then he’s making me do a fasting glucose tolerance test to rule out diabetes & pre-diabetes. I went to do the fasting blood test this morning actually and had a nasty run in with the people at the lab. Just drama, and for me to have “run ins’ with people….that’s not something I do so if someone was rude enough for me to storm out of a place then you know it was pretty bad. All day it’s been one weird inconvenience after another. I’ve been trying not to dwell on it and be positive because I was so irritated at one point that I started giving myself a headache. Ironically however, this morning before any of this happened, I was judging a lady at the doctors office for going around telling every one about how she was running late and it was everyone elses fault and she was going to be late for her next appointment etc. I was thinking, “geesh lady the more you keep talking about it and putting that negative energy out there the more you wil find yourself being late and people running late with you!” And then here I was, an hour later, loosing my head because people were being rude and inconsiderate with me! Interesting huh.
On another note, I have 3 days until my first of two dental surgeries. I’m so completely done thinking about it, I can’t wait to get it over with!
Now, I have a confession: sometimes I write my blogs over several days before I actually post them and then I end up having to add more because so much has happened between the time I started typing said blog entry and the present time. lol. So with that, lol, I had that 3 hour glucose tolerance test yesterday and geesh….I was pretty sick towards the end two and a half hours later with cold sweats and trimmers. I’m super interested to see those test results now considering both of my parents are diabetic type 2 and surprisingly I feel ok today too which is also strange. My dad says, “Do you want to have diabetes?” I told him “no of course I don’t want diabetes but it would be nice to take a pill and fill better for once.” He seemed to understand after that which is good. Anyway, I find out next week. Wouldn’t it be crazy if that’s why I’ve been so sick lately?! I mean it would easily explain why I’ve lost so much weight, the worsening neuropathy, and all the extra nausea. Anyway, I should know by Tuesday or Wednesday of next week. Oh and thank God I didn’t end up having the glucose test with those ladies that were so rude to me last week! I can’t even imagine feeling so bad the way I did and those girls not knowing what to do with me or being ugly. That would have suuuucked. I said to my boyfriend last Friday after that happened that I wasn’t that upset because I guess it just wasn’t meant to be and it actually turned out to be true! Thank goodness! That’s a good Spoonie way to look at things btw, when things don’t work out the way we planned, just accept that there is a reason for everything and that there are better things planned for you in the future. Let go and trust in God or the universe or whoever or whatever you believe in and let it go. Half of life is your mind set and what you make of it. (Way easier said than done I know)
What am I eating this week
This week I am eating Paleo Cajun Dirty Rice which is always amazing, and this time was easy because I just happened to have some frozen cauliflower rice in the freezer. Then my boyfriend made us some hamburgers which I eat with lettuce as a bun. It is sweet of him to cook for us sometimes and make an effort to not put anything in our food that I can’t eat. We were craving corned beef and St.Patricks Day is coming up so I bought a brisket and have a corned beef marinating in the brine in the fridge right now. I’m gonna cook it in the crock pot Friday. It’s going to be delicious! And I’m pretty sure I caught whatever bug my boyfriend had the other day so I bought a Caldo De Pollo kit from the store and let my boyfriend put it together, I called in, and we lounged around and watched some movies. The Caldo was actually really good and we enjoyed the movie and bonus, I’m feeling much better today!
Finishing up this post…the corned beef was delicious! And it turned out not to be a bug from my boyfriend, it was an autoimmune flare, imagine that. Ugh. Lol. Such is the life.
This is the recipe I used for the corned beef and I will add the cabbage recipe below. I do not add saltpeter or brown sugar, I used 1 Tbsp Himalayan Sea Salt for the Saltpeter and use a Tablespoon Black Strap Molasses instead of the half cup of Brown Sugar. If sugar is not an issue for you, you can add 1/4 Cup of Turbinado Raw Cane Sugar with the molasses. From what I understand, the saltpeter is what gives the corned beef it’s reddish color but as you can see, mine is somewhat red without the saltpeter but if the color is that big of a concern to you, try putting some all natural red food coloring in there, or better yet, you could probably even add a slice or two of fresh beat which is what red food coloring is made from anyway!
Sauteed Savory Paleo CabbageIngredients
- 1 head of Cabbage
- 3 slices of uncooked Bacon chopped into small squares.
- 2 Tbsp chopped Scallion
- 2 Tbsp Extra Virgin Olive Oil
- 1 Tbsp Bacon Fat
- Chop 1 head of cabbage into small to medium sized bite size squares. Think stir-fry size. Set aside.
- Heat deep saute pan over medium heat. Add bacon fat and Extra Virgin Olive Oil to pan and heat.
- Add chopped bacon and scallions and stir and cook until scallions are translucent and bacon just begins to brown.
- Add cabbage and stir and mix until all cabbage is covered in the fat and oil and bacon & scallions are evenly distributed.
- Gently stir every couple of minutes to cook evenly.
- When the cabbage is evenly cooked and all pieces have softened, the cabbage is finished!
- Some people add Apple Cider Vinegar to their cabbage and its wonderful. A Tablespoon or 2 of ACV can be added to the pan after cabbage is added to the pan, between steps 4 & 5.
- Gluten loving friends can add 1/2 cup of their favorite pilsner or hefeweizen to the pan instead of the vinegar. In this case, use beer instead of the ACV or use just a teaspoon of the vinegar. Again, add between steps 4 & 5!
I hope everyone has a good rest of your week! Stay positive and thanks for reading!